16 August 2024
Meet our mate Ross.
“I’ve been a big supporter of prostate cancer awareness and fund raising, having taken part in three Long Rides (led by Chris and Gail Dunne) on my motorbike in 2016, 2017 and 2019.
Together with a few mates, I raised over $20,000 for prostate cancer research over the 3 rides. Little did I know that I would be a recipient of that research in just a few years!
“I initially saw my GP in August 2021 because I was experiencing some minor ED and more frequent urination. “She asked for a PSA test (initial PSA was 8.12, then 8.74 a month later). She then referred me to a urologist, who ordered scans plus a physical examination.
“In November 2021, I was diagnosed with prostate cancer, biopsies found an enlarged prostate caused by a large aggressive tumour with a Gleason score of 9 (4 + 5).
“My urologist then advised a Robot-Assisted Radical Prostatectomy (RARP). After the op, I experienced only minor urinary incontinence, but problems with the re-joining of the urethra and bladder meant several problems with catheters, overloaded bladders and being unable to pee, meaning several trips to the ED to get a catheter reinserted. I have experienced on-going problems with this issue.
Post-op pathology confirmed prostate cancer with some evidence that it was beyond the prostate.
“Three months after the op, my PSA levels starting rising again, so it was time for 39 days of radiation plus 6 months hormone therapy (ADT) with Lucrin.
“Following that, my PSA was <0.01, but after waiting another 4 months my PSA, while still low, was showing a rapid doubling rate, even though PET scans showed nothing, so now for the last 6 months I have been back on ADT (initially Firmagon but now changed to Lucrin) plus 1200mgs of Darolutamide daily.
“Both these treatments are knocking me around badly, both physically and emotionally. I can no longer ride my motorbike due to neuropathy and balance problems, and I have to be careful not to get cranky with my very understanding wife.
“But, the good news is - I’m still here and hopefully will be for a while yet.
“I have strongly encouraged all my brothers and sons to get the PSA test done - even if their GP doesn’t think it necessary- and watch for the trends over time.
“Prostate cancer is a horrible journey - avoid it if you possibly can!! Get your PSA tested!!”
Keep up the fight Ross, we are in your corner.
For support with prostate cancer, PCFA is here for you and your family. Call us today on 1800 22 00 99 or visit https://www.prostate.org.au/nursing-support/.
